In particular, Grant hopes to learn about topics like resource management and human behavior, as well as hone his leadership skills in ways that can help him realize his dream of opening Ohana’s Hope. The nonprofit organization would encircle pediatric cancer patients with strength, support, encouragement and, of course, hope for the child and family. One major way this would be accomplished is through providing comfortable lodging.
"There’s not a lot out there, and when you look at staying in regular hotels it’s intimidating,” Grant explains. “People don’t take into account family programs as a whole. They don’t think about siblings and caregivers. I’d like to offer a holistic approach to some of the things that fall outside of the actual medical treatment.”
At 22 months old, Grant was diagnosed with a brain tumor. Initially deemed inoperable, his mother sent his MRI results to doctors across the nation, ultimately finding one in New York who accepted the task of performing resection surgery on a young child. The surgery was successful and progress was positive until Grant relapsed at 3.5 years old. At that point, surgery was no longer an option, and he began on a journey involving clinical trials and chemotherapy. With the exception of some residual side effects from the tumor and treatment, Grant then enjoyed many healthy years until he was diagnosed a third time at the age of 12, at which point the tumor had grown to affect his optic nerve, rendering him legally blind.